£20,000 Grant awarded by
jeans for genes
25 April 09 - £20,000 Grant Awarded
Following a recent application to Jeans for Genes, we are thrilled and delighted to announce that our proposed research project, aiming to identify mutations in the MYO5B Gene*, is to be funded with a grant of £20,000 through the UCL Institute of Child Health (ICH). The UCL Institute of Child Health, in partnership with Great Ormond Street Hospital, is the largest paediatric research centre outside the USA, specialising in pioneering clinical research and postgraduate teaching in children’s health.
The research for this exciting project will be undertaken by our Charity’s Patron, Dr. Neil Shah MBBS (Hons) MD MSc MRCP UK (Consultant Paediatric Gastroenterologist, Great Ormond Street Hospital), Professor Peter Scambler BSc MB ChB MD FRCPath FMedSci (Head of Molecular Medicine Unit at ICH) and Professor Phil Beales BSc MRCS MD MRCP (Wellcome Trust Senior Research Fellow & Honorary Consultant in Clinical Genetics, Molecular Medicine Unit at ICH).
On behalf of everyone at Making it Better – the Daniel Courtney Trust, we would like to extend our very grateful thanks to Professor Andrew Copp, Director of ICH and to everyone at Jeans For Genes. It is wonderful to be given the opportunity to carry out this important research, which we hope will be the first step towards a national diagnostic referral centre for primary disorders of the bowel.
* The MYO5B Gene was recently isolated as the gene responsible for causing Microvillous Atrophy.
Daniel was lucky to have received two transplants in his short lifetime. As Daniel's family we will always be grateful to two very special families who gave Daniel such an incredible gift. Raising awareness of the need for more people to sign the Organ Donor Register is very important to us.
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