I feel privileged to have been Daniel's Mum. He was an absolutely wonderful little boy and incredibly special to me. I am so proud and humbled by the way he remained so cheerful despite everything he went through - he was truly inspirational! He had the most amazing ability to cheer up everyone's day with his beaming smile and charming personality.

This Charity is our way of paying tribute to Daniel and keeping his memory alive. We are determined to raise enough money to fund research into isolating the gene responsible for Microvillous Atrophy, with the ultimate goal of finding a cure for this devastating condition.