patrons

We are delighted that Dr. Neil Shah, Daniel's Consultant at Great Ormond Street Hospital, has agreed to be the patron and medical advisor to our Charity

I have been involved and working at Great Ormond Street Hospital since 1997. I have been a consultant for the last four years as a Paediatric Gastroenterologist. I am honoured to be asked to be a Patron and medical advisor of Making it Better - the Daniel Courtney Trust. I was the consultant in charge of Daniel Courtney from the very first few days of his life.

 

I have had a very long-standing interest in Microvillous Atrophy. I first encountered this condition as a junior doctor and also whilst undertaking research. This research, kindly sponsored by Action Medical Research, looked at the genetic causes of Microvillous Atrophy, with the aim of finding a future cure.

A great deal has been done but a great deal still needs to be done in this devastating condition. I am sure that with support, gene therapy as a cure is a very real possibility.

Dr Neil Shah MBBS (Hons), BSc, MSc, MRCP UK, MD Consultant Paediatric Gastroenterologist Great Ormond Street Hospital

 

 

 

 

Daniel was lucky to have received two transplants in his short lifetime. As Daniel's family we will always be grateful to two very special families who gave Daniel such an incredible gift. Raising awareness of the need for more people to sign the Organ Donor Register is very important to us.

Thank you for your interest in our Charity - we hope you will find this website informative. If you would like to support us, please click on the links under How to Help, or make a donation.